Day Four

"It is courage, courage, courage, that raises the blood of life to crimson splendor. Live bravely and present a brave front to adversity." Horace

Yesterday was the first time Daniel really experienced what it means to have to go without a food item that he really wants. It killed me. We stopped at Starbucks to use a gift card. Everyone got to order a blended vanilla bean drink, as a reward for their diligence in eating healthier. (The doctor told me to be sure and allow some sugar on occasion, so as not to create an obsession.) Since Starbucks did not make a drink using soy milk, Daniel had to find something non-dairy to order. He was fuming. I mean kicking the seat, screaming, saying that he wished everyone would die, kind of fuming. I tried to suggest some other items, but he wouldn't hear of it. I was not sure what the right action to take was at that point. I calmly told him to pick something else, or nothing at all. We left Starbucks with six happy kids and one empty handed, angry Daniel.

In other news, I'm trying to find out if there are any side effects to discontinuing the Focalin XR. Last night, Daniel was so tired, but he kept complaining that his heart was beating weird. Since the medication was a stimulant, it would not surprise me to learn that this is normal. I still have yet to find a concrete answer. I plan on calling the doctor today, to find out. I did find, in my hunt, an excerpt from the original packaging of Focalin XR. I read it very carefully, for the second time in our dealings with ADHD and found it shocking. Why didn't I notice this before? Here is what is says:
"The safety and efficacy of Focalin XR in children under 6 years old have not been established. Long-term effects of Focalin in children have not been well established (see WARNINGS ) .
In a study conducted in young rats, racemic methylphenidate was administered orally at doses of up to 100 mg/kg/day for 9 weeks, starting early in the postnatal period (Postnatal Day 7) and continuing through sexual maturity (Postnatal Week 10). When these animals were tested as adults (Postnatal Weeks 13-14), decreased spontaneous locomotor activity was observed in males and females previously treated with 50 mg/kg/day (approximately 6 times the maximum recommended human dose [MRHD] of racemic methylphenidate on a mg/m 2 basis) or greater, and a deficit in the acquisition of a specific learning task was seen in females exposed to the highest dose (12 times the racemic MRHD on a mg/m 2 basis). The no effect level for juvenile neurobehavioral development in rats was 5 mg/kg/day (half the racemic MRHD on a mg/m 2 basis). The clinical significance of the long-term behavioral effects observed in rats is unknown."

Regardless of the fact that the study was done on rats, this is not kosher. Decreased spontaneous locomotor activity? As in...."Hey watch out for that car! Ohhhh, he wasn't fast enough." I really want my son to be able to spontaneously be able to react to danger and get out of its way, if the need arises. Also, who knows what long term effects will be. Apparently, the manufacturer felt okay with not knowing that tid bit of info. I, however, am not. This was not the only astounding information on adverse effects and side effects. If your child is on Focalin XR, go look it up. Take the time to read the mind boggling amount of info on the package insert. It will shock you.